Today was a “dictionary day.” I went to sleep at a decent hour last night, midnight maybe? But I didn’t couldn’t get up until 3pm. I take that back. At some point I got a bowl of cereal, which I spilled half of on my comforter. [If you don’t know what I mean by ‘dictionaries,’ refer to one of my very first blogs- where I described the feeling on my body when waking up.] You see, because I can’t stand well, I spend lots of time in bed doing things, including eating. I know, it sounds gross- eating in bed. But being so immobile, it just became very convenient. Now that I think of it, if I want to get rid of my ‘steroid weight’… I should just not eat anything in bed anymore. Not only is it cleaner and more sanitary, but I would barely eat. Haha. I would have to go downstairs and eat a meal. Not really a big deal, but it will make a difference I bet.
Anyways, as I said, today was a dictionary day. So, I got nothing done. I hate days like this. But I’m glad I have a name (LUPUS) and reason to tag along with it instead of just‘lazy’. I even missed physical therapy That’s the first time I’ve missed it yet. So that was disappointing. I also have a list of things to do that now I have to put off until tomorrow. Including calling my academic advisor at the college I am going to take courses at. It’s an online college, which seems most fitting for me right now. I would take some courses at a ‘real’ (not online) college, but since I have so many credits completed from my 4 years at Colorado State University, I only need like 2-3 semesters worth of credits to get my Bachelor’s degree in Psychology. So I have a lot to do to get that all set up. I am pretty excited about it. It will give me a purpose for a little while, since I’m not allowed to work, and can’t attend classes at a college right now.
However, it’s almost 6pm, and the dictionaries are gone now. I feel totally normal except for the usual headache. But who wouldn’t have a headache after being in bed for 15 hours! Ughhk.
I’m going to cut this blog short and go make something for dinner after I work on my recipe book a for a little while. And I’ll eat downstairs, at a table!!! Like a normal human being. Man, I am lame… haha. THEN I’ll get ready, because I’m going to ‘go out’ for the first time in sooo long!! I met a super nice chica at the local pub I go to, and we are going to meet up there tonight. I met her last time I went theree, and she showed me how to jailbreak my iphone- so she’s gotta be pretty cool right? Anyways, we are meeting up at 10pm- so this will be a good test of how much Lupus really affects my life- and whether or not I can actually have fun every once in a while!
Wish me luck!