So, after my third dose of Cytoxan Chemotherapy on Thursday (1/19) I was feeling pretty crappy for a few days. Mainly just really run down and had an annoying headache in the shape of a halo around my whole head. I still have a bit of a lingering headache in the back of my head, but I am doing fine on the nausea factor! To be honest, I’m not sure if it’s because I took multiple nausea meds or not, but I haven’t really had that come up as an issue at all. The night of the Cytoxan I felt like a laptop running out of battery.
Yesterday, I was going to paint pottery for some relaxation time with my mom… but we ended up shoe shopping instead… DUE to the winter storm leaving slush all over the city- and me only having ONE pair of shoes (mesh sided sneakers) that fit over my KAFO brace. Shoe shopping sounds fun! …until you’re sweating bent over in a chair at Macy’s trying on your 12th boot that just won’ t fit over the damn ankle hinges and awkward brace. After a few hours in the shoe department, we ended up in a different Macy’s store altogether, which had the apparent sizes I needed of the shoes that might fit. End of story….I ended up with shoes! Shoes I actually love!!! I got essentially a pair for everything I need- but not too many pairs! I got one pair of sweater funny looking but mighty comfy boots, followed by a pair of super cute black and gray wet weather boots (Coach brand!!!<— by chance that brand was the only one that would go on over my brace! Promise.)
I wear a 7 shoe size. These are a 9. The brace boot fit great, but I had to go to an shoe repair guy to make the left shoe fit my 'baby' foot. In addition to those super functional rain/snow boots, I got one pair or black leather flats, and two pair of 'Sperry Top Siders' (one pair pink with plaid, and one patent black with houndstooth). So In addition to those I have my mesh-y black/pink sneakers that I have been wearing with it. Complete Set! That was hard work finding those shoes. Thank goodness my mom was there to help me out- since, in the process, but not because of it, my brace BROKE AGAIN. It started broken in the morning when I put it on I noticed the bolt that slides in the angle hinge was GONE. Therefore, I was luckily enough to have the screws come unattached from the hinge unit, making it near impossible to walk- but oh well, I kept on shoe shopping!
Then I got home to set up my nebulizer after being in the cold air for the day, and whilst on the floor trying to set it up, I sat on and shattered the medication dispenser cap. BUMMER. I got a new one today from the same guy who fixed my shoes though (@ a Medical Supply Store).
It’s an old school picnic basket! Except instead of picnic stuff, it’s make by Grey Goose! I randomly got it at the salvation army one day a while back, and it is so cute and perfect! It has little geese all over the inside lining. Apparently it was something like this but I think my usage is wayy better!!
Today (Monday 1/23) I had an eye doctor’s appointment. I need bifocals…. I’m getting old!! I told my last eye doctor I needed them, but she didn’t think soo. This one said I definitely do. But I didn’t like the other doctor to start with, so… I guess go with your gut! Haha But I am excited to get my new glasses. They are Vera Bradley brand too!! Funny. I’ll include a pic when I get them, they’re pretty normal looking though just to warn you! No hot-pink believe it or not!!
Tomorrow morning I will take
“the leg” the brace BACK to the orthotic device office and have them replace the part. Mike, the employee there said they will ‘blue lock-tite’ the rest of the screws so hopefully I get to actually keep it…..working. Because giving it back is getting really old. I’m not giving it back tomorrow. I’m waiting for them to fix it there. I like walking, so I’ll wait the extra 20 min. You never really know how much we take something as simple as WALKING for granted until you cannot do it. Talk about losing your independence!! My brace [my 'leg' as I call it] is a very important part of me now!!
I am going to try to start this ’30 days of Truth’ thing I found on another blog soon (today/tomorrow). I think the only way I can do it is if I link it to the pages on the menu at the top, because you can’t really have two blogs– on one blog from what I understand.
THEN tomorrow (Tues 1/24)
My amazing hospital roommate from New Jersey, JUDY, whom I met back in November, is coming with her mom to stay for two nights while she has doctors’ appointments in Philly. I thought it’d be a great idea to have them over here. It will save them hotel money and we get to spend time together as actual FRIENDS outside the hospital setting!! I’m so excited. She is a great person, dealing with so much. I’m ready for some good conversation If anyone thinks I am inspiring or ‘strong’ for going through a lot, you should meet this young lady. Wow. She is an inspiration to me! I can’t wait to actually spend more time together and chat!!!
Ok, bedtime now, Talk to ya later